JTSMA "More information" Page This page is the index to various articles to help or interest you (and sometimes just to amuse you).

If you have an article to contribute, or know of something you think we should include, please e-mail it to Dan Everard and if we can we will include it, (attachments as .txt .gif or .jpg please).

•   A Trip to Holland, a philosophical look at our world.

•   JTSMA Information Sheets:
  1.   Positive and Appropriate Terminology.
  2.   Powered Wheelchairs, "EPIOCS the NHS and Children, do they go together?"
  3.   Bowel Management & SMA.
  5.   The Use of Night-time Ventilation for people with SMA.
  7.   Wheelchair Services, EPIOCS & the Voucher system.
•   A BBC Article on the BBC Watchdog site about Pre-Implantation Genetic Diagnosis (PGD).

•   Some personal stories of Type I babies by their parents. These contain a lot of good advice that may be helpful to parents either as new information or just to compare notes. This is the text of a JTSMA booklet which is dedicated to all the Jennifer Trust children.
  1.   Paula, Bohdan and Nicole.
  2.   Jane, Trevor and Alice.
  3.   Sue, David and Abigail.
  4.   Marie, Malcolm and Jessica.
  5.   Kirit, Chug and Amar.
  6.   Sarah, Craig and Phoebe.
  7.   Judith, Paul, Rhianna and Joanna.
•   Two anecdotes by Mike Squire who was chairman of the JTSMA from September 1997 to December 1998. These are part of the tribute pages to Mike on this website.
  1.   Life at the Bottom Level.
  2.   An Uplifting Experience.
•   The 15th Anniversary Service of Remembrance and Thanksgiving Order of Service;
  this was held at Holy Trinity Church, Stratford upon Avon on 17th June, 2000. If you were not able to come, but would have liked to have done so, this may recompense a little.

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© JTSMA, 1998-2001