Conferences and Training Pages

An index to the JTSMA pages about
Conferences and Training Days
Check the diary pages for more Conference information
As we publish pages they will be added to this index. Eventually this will be an index not just of forthcoming events but also to articles published here on papers and talks given at JTSMA Events. Each page has a link at the bottom to bring you back here.

Future Events

Family Care Days

The Jennifer Trust for Spinal Muscular Atrophy has a philosophy and history of working hard develop awareness of and information about best care practice for people affected by this condition. We have developed close working relationships with some of the top UK experts in Spinal Muscular Atrophy (SMA) and SMA management, attending medical seminars and conferences and funding research into both genetic research and current management practice.

We have developed a number of key initiatives placing us at the forefront of developing awareness of the major issues surrounding SMA care, including respiration and nutrition.

We are therefore very excited and pleased to announce the launch of the first in a series of "Family Care Development Days".

Dr Anita Simonds and Annie Bagnall will lead the first two of these days.

Dr Simonds is one of the UK's leading experts in SMA Respiratory Management and is Consultant in Respiratory Medicine at The Royal Brompton Hospital, London.

Annie Bagnall is Paediatric Speech and Language Therapist at The Hammersmith Hospital, London. Annie also has a wealth of experience with individuals who have Spinal Muscular Atrophy and has made excellent presentations at our Annual Conference.

If you would like more information about these or future care days, or the work of The Jennifer Trust, please contact Tim Dowan - 01789 267520

These events have been supported by The PPP Foundation, The Roald Dahl Foundation and The Ammco Trust

 

Opening the Door, III

"THE JOURNEY INTO EMPLOYMENT"

Your future is out there   .   .   .

For information and inspiration that can help you to live how and where you choose, come to:

'Opening the Door'
Manchester United Football Club
Old Trafford Stadium
on
Saturday 13th July 2002.

For information call Rachel Ford on 01789 267520

Past Events

Conference 2001

"Just Think - So many Achievements"

NEW VENUE
The Ettington Chase Conference Centre,
Ettington, Stratford upon Avon, Warwickshire, UK		 Ettington pic
The weekend offers an opportunity to meet others who have similar experiences to you in a relaxed and friendly environment.

Topics include : -

  •   Respiration Management

  •   Research

  •   Education Issues

  •   Hip Management
  •   Type I SMA Workshop

  •   Management Issues and Aids
    for Type III and Adult Onset SMA

  •   Manual Handling and Lifting

  •   Personal Experiences

  •   A Full Programme of Activities for the Children & Crèche Facilities.

Residential rates - The same as 2000!
Subsidised costs to families and adults with SMA : -

Adults . . . UKP 75.00         Children 3-17 . . . UKP 20.00         Under 3's . . . Free
Personal Assistant (accompanying a single adult with SMA) . . . UKP 75.00

( Other Relatives & Professionals . . . UKP 175.00 )

Price includes 2 nights accommodation, conference, all meals and children's activities.

 

 

MM 2000: The JTSMA Annual Conference was held on 15 - 17 September 2000
The theme was Motivation and Management

 

 

The "Opening the Door" conference was held on Saturday 1 July 2000

 

 

The Respiration Working Party met on Monday 10th July 2000 at the Heartlands Hospital, Birmingham.

 

 

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© JTSMA June 2000